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A Systematic Review of Validated Methods to Capture Several Rare Conditions using Administrative or Claims Data

    Basic Details
    Health Outcome(s)
    Henoch Schönlein purpura (HSP)
    acute disseminated encephalomyelitis (ADEM)
    optic neuritis

    This article describes a systematic review to identify algorithms to detect acute disseminated encephalomyelitis (ADEM), optic neuritis, tics, and Henoch Schönlein purpura (HSP) using administrative data sources and to describe the performance characteristics of these algorithms as reported by the studies in which they were used.


    Christopher D. Lee MD, MPH, S. Elizabeth Williams MD, Nila A. Sathe MA, MLIS, Melissa L. McPheeters PhD, MPH

    Corresponding Author

    Christopher D. Lee, Department of Neurology, Vanderbilt University Medical Center, 1161 21st Avenue South, A-0118 MCN, Nashville, TN 37232, USA. Email: